tag:blogger.com,1999:blog-30218415.post116006811116747724..comments2023-10-09T01:35:08.686-07:00Comments on Living With PKD: Johns HopkinsHeather O.http://www.blogger.com/profile/00294085512048242495noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-30218415.post-1163083964334213202006-11-09T06:52:00.000-08:002006-11-09T06:52:00.000-08:00From my mom's experience, I would say your best be...From my mom's experience, I would say your best bet is a nephrologist who has had as much experience with PKD spcifically as possible. Especially when she started dialysis, my mom discovered all sorts of little side-effects that nobody told her about - in the end the very experienced nurse at the dialysis clinic was her best resource as she had seen it all before. If you're having surgery, head for the nearest teaching hospital - but for long-term care, choose somebody YOU are comfortable with and knows about YOUR disease.Jeannehttps://www.blogger.com/profile/12325204219395014329noreply@blogger.comtag:blogger.com,1999:blog-30218415.post-1160080345155984302006-10-05T13:32:00.000-07:002006-10-05T13:32:00.000-07:00Thanks for the input, Jess. I was thinking that f...Thanks for the input, Jess. I was thinking that for an eventual transplant, Hopkins would be a good place. I know that there are advancements in kidney transplant surgery, and it would be nice to be at a place with cutting edge technology for something that big. I also know that there have been some shifts in medication (like trying to get away from prednisone) that Hopkins might be more current on.<BR/><BR/> But I'm wary that they could give me better treatment than my local nephrologist. She answered all my questions, and is doing everything I would expect her to do--checking my levels every 6 months, checking the growth of my kidneys, etc.<BR/><BR/>Anyway, thanks for the info, and thanks for reading!Heather O.https://www.blogger.com/profile/00294085512048242495noreply@blogger.com