tag:blogger.com,1999:blog-30218415.post2323469368919227482..comments2023-10-09T01:35:08.686-07:00Comments on Living With PKD: Wash OutHeather O.http://www.blogger.com/profile/00294085512048242495noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-30218415.post-45021684873687656142009-01-14T09:35:00.000-08:002009-01-14T09:35:00.000-08:00So I know you've already been to your appointment ...So I know you've already been to your appointment and it turned out to be an open machine so no freaking out necessary, but I just have to say this anyway: VALIUM. (Or would that mess up the results??) I had a closed MRI (in Washington, D.C. also, interestingly enough) and they asked if I was claustrophobic and I said YES, YES, A THOUSAND TIMES, YES so they gave me this nice little blue pill with a "V" cut out of the middle and I nearly fell asleep in the MRI machine, which was a bad thing because they needed me to hold my head just so. I just wanted them to leave off bothering me so I could catch some ZZZZ's!!! Not freaked out at all. :) <BR/><BR/>(The ID says Andrew but this is MB.)Anonymoushttps://www.blogger.com/profile/11094195654645768404noreply@blogger.comtag:blogger.com,1999:blog-30218415.post-38776127155088062762009-01-03T07:52:00.000-08:002009-01-03T07:52:00.000-08:00In her book, Surviving Cancer, Margie Levine wrote...In her book, Surviving Cancer, Margie Levine wrote about her MRI experiences: While lying for endless hours in the claustrophobia-inducing tunnels of hospital MRI machines, I made use of a special visualization. I allowed my mind to turn the ear-blasting banging of the machine into the visualized imagery of hovering angels hammering at my tumor with golden axes. Chip by chip, piece by piece, I envisioned my tumor decreasing in size."<BR/><BR/>Perhaps your cysts will respond to those angels' hammers too.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-50972016752199696442009-01-02T19:36:00.000-08:002009-01-02T19:36:00.000-08:00Oh...MRI's...my nemisis. I HATE them. I have yet...Oh...MRI's...my nemisis. I HATE them. I have yet to figure out how to get through the torture (much like the dentist chair). I'll let you know when I do. In the meantime, would an IPOD help? Good luck and don't feel so guilty. For crying out loud, we're MOTHERS! :)Beckyhttps://www.blogger.com/profile/08292600488274565276noreply@blogger.comtag:blogger.com,1999:blog-30218415.post-57314014910831916852009-01-02T15:39:00.000-08:002009-01-02T15:39:00.000-08:00I just discovered your blog today and have enjoyed...I just discovered your blog today and have enjoyed reading about your journey and have found it very informative. I was diagnosed with PDK in June of 08. I was not one to visit the doctor, but when I noticed a large lump just below my left rib cage, I thought I'd better have it checked out. I was immediately scheduled for a CAT scan and 3 days later the doc called with the news. He told me to look the disease up on the internet and scheduled some additional lab tests. Those results came to me in a letter with the hand written comment "everything looks fine, lower salt intake and have blood pressure checked and labs in 1yr" My creatinine level is .9 which is within the normal range, but I have no earlier number to compare to. I guess I will have to wait until I go in again in June to find out if things are going downhill. I never got to see the pictures from the CAT scan, so I was suprised to hear that you have so much information about your kidneys. I look forward to reading about your participation in the Halt study.Anonymousnoreply@blogger.com