tag:blogger.com,1999:blog-30218415.post2369828314661797537..comments2023-10-09T01:35:08.686-07:00Comments on Living With PKD: The gospel according to meHeather O.http://www.blogger.com/profile/00294085512048242495noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-30218415.post-81916701103562373222017-02-26T10:43:40.553-08:002017-02-26T10:43:40.553-08:00Depressed Greg
I watched it kill my dad. He was o...Depressed Greg<br /><br />I watched it kill my dad. He was on dialysis for years while it weakened his body. Then the cancer came. Too weak to fight it as it kept coming back he was gone in a year. I wish I would never have been diagnosed. It has made me feel like I have no future past 57 as his whole family hasn't lived past about that age. He had seven brothers and a sister. All but two didn't get PKD. His dad died from it. Especially after seeing what it did to him. I just can't be positive about getting older. Relationships. I want those things. But why burden someone with going through all that? Passing it on to the children. I think about just killing myself all the time. Hardly anyone actually get a transplant. Then in going to live in poverty on SSI like my dad not being able to work. I am a ruined person at 34 years old. Anonymoushttps://www.blogger.com/profile/13935981731032622182noreply@blogger.comtag:blogger.com,1999:blog-30218415.post-37688400799287037422014-05-30T18:08:44.188-07:002014-05-30T18:08:44.188-07:00@depressed Greg: That's the kind of thinking y...@depressed Greg: That's the kind of thinking you really want to avoid. Especially since the outlook for the condition is not really that gloomy. I wouldn't trade my PKD with Cancer for example, where the treatment itself is so grueling it can kill you while it's trying to kill the Cancer. Things could be MUCH MUCH WORSE.<br /><br />Notice the pattern in everyone else who is also LIVING WITH PKD. Our wonderful blogger is an awesome example. So the "secret" is, eat as healthy as you can, get some serious exercise at least 3 times a week, AND address your mental health too. <br /><br />You can do it! Despite having PKD, your life is still yours to live. And, PKD patients have lived into their 90's!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-71360594226170113162014-02-25T03:57:15.946-08:002014-02-25T03:57:15.946-08:00Heather....this is a good blog. i have been extrem...Heather....this is a good blog. i have been extremely depressed....i have not considered anti-depressants before. i am just worried about the withdrawal from them if i ever chose to stop them.<br /><br /> i know that i need something. this pkd has ruined my outlook on life for years now. Lexapro huh? I don't even have a doctor for any of it. my blood pressure is a little high. i am angry a lot. some days hurt more than others physically and mentally.<br /> i am really sad about life. i want children...but don't wanna pass it on...i want a wife, but don't want to put someone else through my pain. let alone passing away way before them. i'm 31. if i had kids next year i'd only be around till my kids were like 24 unless a miracle in science happens or i get a transplant....both of which have the odds stacked against me seeing that our government doesn't want to cure anything. cause they make more money from treatment. and barely anyone gets a transplant. And i would never be able to afford the anti rejection drugs....Depressed Gregnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-55607939847800737712009-12-08T12:56:15.653-08:002009-12-08T12:56:15.653-08:00I am SO glad that I found your blog. I have PKD an...I am SO glad that I found your blog. I have PKD and have known for 9 years. As my symptoms have increased, so has my tendancies toward depression & anxiety. I try so hard not to let this define me, but I find myself getting depressed, pissed off & anxious more and more lately. I have been putting off asking my doctor for help, but don't think I can do that anymore. Like you, I thought that I could get by on the endorphines that daily exercise brings (I'm a martial artist), but that's not true any longer. Again, I appreciate your blog & honesty! You are showing me that I'm not alone and that I'm not that crazy afterall!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-11569986069708234562009-11-24T22:22:06.618-08:002009-11-24T22:22:06.618-08:00I think the biggest thing that newly diagnosed peo...I think the biggest thing that newly diagnosed people need to realize is that just because you have a diagnosis does not always mean you'll end up with problems. Lots of people live with the desease and show no signs of illness at all, whilst others end up on dialysis needing a transplant. It's a crapshoot. You can try dietary and lifestyle changes but basically learning to deal with the hand you're dealt is the best thing I would advise.<br />I follow a low potassium, low animal protein diet (vegetarian for 18 years) and that's worked for me so far. I also stay away from soda and processed foods.Dianenoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-51172276591739644652009-11-24T11:41:52.124-08:002009-11-24T11:41:52.124-08:00It's so hard because there is not a single met...It's so hard because there is not a single method to "fix" anything kidney related. Low potassium is the only thing I follow really closely, and that is only because I literally have chest pains if I have too much of it. <br /><br />But I still splurge, and it does not seem to damage my kidneys more. <br /><br />Great post, by the way. So many things people CAN try and that work for some people!Rob Monroehttps://www.blogger.com/profile/15213481414668281312noreply@blogger.comtag:blogger.com,1999:blog-30218415.post-49328982189604894632009-11-24T11:37:25.883-08:002009-11-24T11:37:25.883-08:00I just love you to pieces Heather. Thanks for kee...I just love you to pieces Heather. Thanks for keeping it real! xoxoBeckyhttps://www.blogger.com/profile/08292600488274565276noreply@blogger.com