tag:blogger.com,1999:blog-30218415.post7604445273067267474..comments2023-10-09T01:35:08.686-07:00Comments on Living With PKD: The next big adventureHeather O.http://www.blogger.com/profile/00294085512048242495noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-30218415.post-62957875373242587582012-05-06T09:59:19.359-07:002012-05-06T09:59:19.359-07:00Hi my name saran, i'am from N.C. was diagnosis...Hi my name saran, i'am from N.C. was diagnosis in 2010 after my father came ill. We as a family never knew. My father had a transplant and my sister has the disease also, i was pregnant once in 2005 with twins and miscarried at 2months. i have never gotten pregnant again. i have now fallen in love and engaged and trying for year and 1/2. I have been told i have pkd at 38 and low eggs and low egg count. my kidney Dr said i need to give up on having a child because the baby will die or be born with birth defects, i cried for a week. i believe in god and it hard to understand why i have had all this hit me at once. i have been on femur and have done 4 iui with no success. i believe i am to be a mom , and what to know if anyone use fertility treatments and how due you cope with pkd. please email me at sdmason73@gmail.com<br />i would love to see if anyone else has used treatments and what they use dto get pregnant. i want give up on my dream!midlife in winston salemhttps://www.blogger.com/profile/06568311435358845365noreply@blogger.comtag:blogger.com,1999:blog-30218415.post-43519550816219963382012-02-13T22:48:45.810-08:002012-02-13T22:48:45.810-08:00This site is great :) I am 35 now. I was diagnosed...This site is great :) I am 35 now. I was diagnosed with PKD when I was 17. I had my first baby when I was 33. She was born at 29 weeks and she is perfectly fine. My husband and I want to try for # 2 but it is a little scary going into the 2 nd pregnancy. I developed HELLP Syndrome with Ava. My OB says I am at less risk fit HELLP with a second pregnancy. My kidney function right now is at 36%. I may have to start dialysis if I have another babe.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-43588157892138280912011-10-26T04:28:13.400-07:002011-10-26T04:28:13.400-07:00Heather,
Congratulations on your dreams come true....Heather,<br />Congratulations on your dreams come true. I wanted to post as this is the first I have found a place to write about PKD and PreEclampsia. I delivered at 32 weeks, induced, pre Eclampsia, PKD complications, etc. My beautiful baby girl is now 16 and was diagnosed with PKD at the age of 13. I am now devoting as much of my time as I can to finding a treatment and hopefully a cure for PKD.<br /><br />I am going to this years Pre eclampsia Gala in New York and looking to get a table of 10 representing PKD. If any of you would like to join me in my effort please let me know. <br />kmmichiels@aol.com<br />The event is on Nov. 12th. <br />Event website is:<br />http://savinggrace.preeclampsia.org/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-75482287891940243592009-06-08T18:58:18.151-07:002009-06-08T18:58:18.151-07:00Congratulations! I have pkd, and was diagnosed as ...Congratulations! I have pkd, and was diagnosed as a child. I`m pregnant with bub number 4 and its starting to take its toll on one of my kidneys, having alot of pain. I`m hopeful it wont aggrivate the pregnancy and i`ll be seeing a specialist after bubs born. Good luck with everything!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-56439226804106337042009-03-27T12:54:00.000-07:002009-03-27T12:54:00.000-07:00Heather....Congratulations on your second lil one!...Heather....Congratulations on your second lil one! <BR/><BR/>Im 20 years old and im pregnant with my 2nd child too. with my first i had major problems. not much with high blood pressure but with getting sick all the time and i mean non stop.. I lost so much weight it wasn't funny. And i also had a problem with my liver failing. PKD runs in my family and my mom is 41 and it is starting to affect her bad so i decided to look some information up and i found your blog and i started to think maybe i could have pkd and thats why none of the doctors could tell me what is wrong with me. With this pregnancy i am on a pill called zonfran...and that has helped a lil but not a lot. So do you think i could have PKD...Should i got checked now or wait until after i have this one? Well please please help me out...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-84557831742563535312008-06-11T17:09:00.000-07:002008-06-11T17:09:00.000-07:00Hi Heather!!!This is the first time I have read yo...Hi Heather!!!<BR/>This is the first time I have read your story. I found it on google. If you don't mind letting me know how old you are. I am 21 and I found out I had PKD at 18. I have an aggresive family history and have had problems with chronic hypertension. I have a son who is 18 months old and I would like to have another. My first pregnancy was not too bad. The doctors had some problems keeping my blood pressure under control. Since wanting another baby I have had a miscarriage and a difficult time getting pregnant. My problem is that my husband does not want me to have another baby, he wants to adopt. He is scared of something happening to me. My nephrologist does not think I should have anymore kids either and if I do I do not have much time to do it in. In my heart I just cannont except that. I get so upset when I think about it. I feel like my time is running out. My mother had four kids and her only problem was she had toxemia with my brother. She did not have the problems I have at that time. I am just so confused and I am not really sure who to talk to about it. I figured this would be kinda cool because your opinions are not biased. <BR/>amandaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-54866736414403309632007-05-25T08:39:00.000-07:002007-05-25T08:39:00.000-07:00Loni-I hope your daughter was okay. 25 weeks is a...Loni-<BR/><BR/>I hope your daughter was okay. 25 weeks is awfully little!<BR/><BR/>Pre-eclampsia has been my doctor's worry all along, and she has had me on bedrest and medication for high blood pressure for a while. Fortunately, we are past 37 weeks at this point, so I have high hopes for a very healthy delivery. We even have a date to induce, should I go that far. I've been seeing my OB every week for months now, and every time I go she keeps shaking her head, and saying things like, "I'd never thought we'd get here." At one point, a nurse said, "Why are you so surprised she's doing so well?" and my OB said, "This woman has kidneys the size of footballs! And she's been able to carry a baby full term--it's amazing!"<BR/><BR/>I think she's right. It is amazing, and quite miraculous. We are very grateful.Heather O.https://www.blogger.com/profile/00294085512048242495noreply@blogger.comtag:blogger.com,1999:blog-30218415.post-57756870238291508412007-05-24T19:39:00.000-07:002007-05-24T19:39:00.000-07:00congratulations Heather!I too have polycystic kidn...congratulations Heather!<BR/><BR/>I too have polycystic kidney disease and had a difficult pregnancy. I ended up delivering at 25 weeks due to pre-eclampsia. <BR/><BR/>Ever since my little girl was born, I thought that I would never be able to have another child. But your story has gave me hope that although another pregnancy will be difficult on me, it is possible.<BR/><BR/>Best of luck to you and your familyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-18528707544093140472007-05-22T18:29:00.000-07:002007-05-22T18:29:00.000-07:00Heather, congrats! I too am pregnant with our seco...Heather, congrats! I too am pregnant with our second child and also have PKD. We were married 13 years and went through much to have a child and the current pregnancy. I feel God has lead us to having children, and they are miracles. There is not a day that I am not grateful. My health is ok and when I feel bad I think it could be worst. As a nurse I see many worst cases and keep going on with the help of God. Best wishes and may you continue to be blessed.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30218415.post-28045603472161948132007-05-19T00:21:00.000-07:002007-05-19T00:21:00.000-07:00that is great news ,I am very happy for you and yo...that is great news ,I am very happy for you and your family.Unknownhttps://www.blogger.com/profile/03775919398510865594noreply@blogger.comtag:blogger.com,1999:blog-30218415.post-81729932792183449312007-05-16T10:12:00.000-07:002007-05-16T10:12:00.000-07:00Heather, congratulations! How wonderful!I know thi...Heather, congratulations! How wonderful!<BR/><BR/>I know thinking this is/could be your last preganacy is hard (as least it was for me) but I think that awareness made the experience of having Quinn and her baby stage especially much sweeter. We decided to stop at two after both were dx with pkd. <BR/><BR/>So...enjoy the next few weeks. Best wishes for safe journey here for baby girl and for you as well!Anonymousnoreply@blogger.com