We need a blog. Us. Patients with PKD. I just went to the PKD Foundation Conference, "Hope on the Hill", and there were lots of things for patients. Lots of information, lots of hope, lots of good people. But no support group. So, we're starting one. This one. This blog.
This is a place where hopefully people can post about how their disease is progressing, how they are feeling about the progression, and what they are doing about it. Hopefully this will be a good place.
If you are interested in becoming a contributor, or submitting a guest post, please email me, Heather O, at firstname.lastname@example.org
Thanks, and please come again!