I don't have ARPKD. I have ADPKD, the adult onset type. But here is a video to touch your heart about what some families who struggle with ARPKD are going through:
wow - thanks for making me cry in a public place (i'm at the hospital waiting for ben tom come out of surgery) it's amazing what people have to go through. i am determined to donate some of ben's organs when it's his time - as long as they are healthy. hopefully his kidneys can benefit someone like sage. love you heather!
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wow - thanks for making me cry in a public place (i'm at the hospital waiting for ben tom come out of surgery) it's amazing what people have to go through. i am determined to donate some of ben's organs when it's his time - as long as they are healthy. hopefully his kidneys can benefit someone like sage. love you heather!
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