The Virginia Tidewater chapter of the PKD Foundation had a very successful walk in September, and hopefully I've thanked everybody who donated and sponsored us in the walk. I thought I would talk about a few things that are going on with the PKD Foundation, just so everybody knows that the money is being put to good use.
First and foremost, there are the clinical trials for drugs that hopefully can help slow the progress of the cysts, which hopefully every patient with PKD knows about. This link should give you what you need to know.
There is also a new feature on the Foundation's website that allows doctors to download/order information for their waiting rooms, for their own personal use, etc. A patient can do the same, and provide their providers with some info. This is a great thing, because I sure know my provider could use a little more education. This link will take you where you need to go.
Want to watch a cool video? Ok, so it is a plug for money at the end, but it's pretty interesting anyway. Click here, and then click on "Watch our campaign video!" It's 9 minutes long, so really, no more time spent than reading your average blog post :)
You can always subscribe to the PKD magazine for $25 a year. It's a good magazine with a lot of good info. I hear they have just redesigned it, so it looks great!
Living with a disease like PKD can often be very frightening, overwhelming, and quite lonely. Having a network like the PKD Foundation has been extremely beneficial to me and my family as we make our way through this new journey, and being able to meet other people who have PKD and learn how they are dealing with it has been an enormous comfort and a huge help in this process. And I absolutely have the PKD Foundation to thank for that.
So, thanks, and we'll see you in Florida for the Convention this June!
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