This is the kind of stuff on the internet that I hate. The first sentence includes the word "horrific" with the disease PKD. This was the kind of stuff that terrified me when I first got diagnosed.
This article suggests that PKD is this terrible, awful, evil disease that will rob your life. That you can only live 4 years from a kidney transplant. That life as you know it will end once you get diagnosed with this "horrific" disease.
I'm sure whoever wrote this "research" paper did so with good intentions. And it sounds like he or she was personally affected by a death in the family as a result of PKD. But what I wish I had understood when I first got diagnosed is that everybody has his own story. And this is only one.
For example, not everybody dies after 4 years with a kidney transplant, that in fact, survival rates with a living donor after 10 years can be as high as 77%. Those are pretty good odds, if you ask me. I have been able to meet people who have been living even longer than that with their transplanted kidneys, and their lives are far from horrific.
PKD is not an easy disease. I doubt you could say any disease is easy. But certainly there are harder ones to live with, and ones that are more horrific. I hope that we can see more examples on the internet of people living happy and productive lives with PKD.