Wednesday, May 13, 2009

A lot of pee in one week

It's been a kidney intense week. It started last Thursday, when I did my 24 hour urine collection for my nephrologist here, which of course lasted until Friday. I got a blood draw Friday morning, and then Sunday afternoon headed out to Boston to see Dr. Steinman and spend yet another 2 days collecting urine. On Tuesday afternoon, I've never been so happy to pee in a toilet in all my life.

More blood draws, more conversations, and then back home to see my nephrologist here, with more lab results.

Phew.

There is good news, though. For the first time in 2 years, my creatnine is stable, which means that my kidney function has stablized since Little Sister was born. She'll be two next month, which makes me feel good and weird and happy and sad all at the same time. My baby, two years old? And it took 2 years for my body to finally feel good again?

The question, of course, is why my creatnine is stablized. The most likely explanation is that the drug study is working, and that this new treatment has some promise after all. That would be good news, although it's a bit early to think that. And I've spent so much emotional energy preparing myself for a kidney transplant, it's almost like I can't get rid of the idea altogether. Plus, what if this is just a temporary thing (which, let's face it, is probably the most likely)? Then I get back on the emotional rollar coaster.

Sheesh, I haven't felt this emotionally whiplashed since college, when I made out with my best friend (yes, he was a guy) who then refused to speak to me for 2 weeks.

Ah, young love. Or, whatever that was.

2 comments:

RobMonroe said...

Glad to hear that your levels have balanced out! Very hopeful indeed that this is a trend, not a fluke.

My daughter is going to be two next month also. Very weird to think that it's only been two years...

Anonymous said...

Can I ask are u ladies worried it kids will have pkd? I don't have kids yet but want them I'm unsure what to do now