I saw my new nephrologist today, and I think I like her. What a relief! I would hate to have to search for another one, or have to drive an hour to get to somebody I like. She seemed to have a handle on PKD, and even mentioned other patients she has treated with PKD, so at least she's seen this before.
We chatted about my history, my diagnosis, how to proceed, etc,etc. Then she did my physical exam, and palpated my kidneys.
"Wow", she said.
"Yes, they're big," I explained. She just nodded.
I don't think that was a good "wow", like "Wow, you are incredibly fit I'm so impressed by your physical prowess", or even, "Wow, you're outfit is so unbelievable coordinated I'm thinking of hiring you as a my fashion guru." I think it was more like a "Wow, your kidneys are so big I'm considered writing the words 'Freak of Nature' in your chart after you leave."
Not exactly something you want a doctor to say.
Still, she seemed calm, and told me to come back in January. Things are ok now, but she did point out that I'm young, and, well, I have a long way to go.
"Keep those kidneys from getting any bigger, okay?" she said as she walked out the door.
Oh, if only I knew how to do that. Clearly, she hustled out of there because she, too, has no clue how to stop the madness.
Oh well. At least I got a "wow".