That's what they are going to call me after my transplant. Or at least that's what I gather after seeing this clip involving super Hollywood designer, Steven Cojocaru, a PKD patient who has gone through two kidney transplants.
He said the steroids made him crazy. Completely.
I am learning, bit by bit, what it means to have an kidney transplant, although I'm constantly discovering just how much more I need to learn. I vaguely knew one took steroids, but I was more focused on the "Hey, didn't you know that the immunosuppressents you have to take afterwards make you susceptible to skin cancer" aspect of the whole side effects issue to be overly concerned with the steroid part. I knew they make you fat, but I thought that was temporary. I've been temporarily fat before--pregnancy and all, so I figured I could handle it.
Going nutso--not so much.
I could probably freak out at my husband, who would probably hate it, but take it anyway. But what this man describes is absolutely unnacceptable behavior around children, kids who will be unsettled and upset anyways, seeing their mother ill and hospitalized. Hopefully my children will be fairly self sufficient by the time I need a transplant (and my husband constantly reminds me that there is an "if" in there that I routinely ignore--yes, I married an optimist.), but that doesn't mean it won't be traumatizing to see their mother, as Cojocaru described it, "seething" with rage.
This worries me. Truly. To have my mental state so radically altered is something I have never heard about, and it makes me sick to my stomach to think that my children will have to witness something like that.
Anybody have some rays of hope to offer?
On the plus side of all of this, it's nice to see a celebrity talking about PKD in such a candid way, and with Mary Hart, of all people. It's nice to see somebody who has people like Renee Zellweger sending him balloons on our side of the fight. Maybe he'll design some cool PKD, um, evening gown or something.
Ok, that was a weird statement. Sorry.