Saturday, March 08, 2008

Lame blogger

That's me. All day I have been trying to think of things to blog, as I blog at two other places (three if you count my private family blog-yes, I do keep SOME things private. Hard to believe, I know, but there you go). So far, I've come up with very little.

And I think that is a good thing.

I don't have any horrendous health scares to blog about, my children are safe and happy and healthy, and even my baby seems to have stopped pooping in the bathtub, making life much more pleasant all around. My blood pressue continues to be well managed, and that pleases me more than anything. We had thought we would have to increase my medicine, which doesn't sound very fun, but with diet changes and an increase in exercise, things are stable. For now. And I have learned never to underestimate the beauty of stability.

For the first time in a year, I am going to our local PKD chapter's meeting tomorrow. These meetings are always held on Sunday, and last year I didn't make it to any. They conflicted with our church schedule, not to mention the fact that I felt like dog chow for most of 2007.

But it's a new year, with a new church meeting schedule, so I'm looking forward to being a little bit more active in our chapter's activities this year. Fundraising doesn't scare me nearly as much as it did, and I'm getting used to the fact that I have PKD. I know, it's been two years, which seems like it would be more than sufficient time to adjust, but cut me some slack here. In addition to being diagnosed with PKD in 2006, we sold our house, my husband got a new job, we moved to a new city, and I got pregnant. There's only so much a girl can take in at once.

At our chapter's walk this year, somebody was honored who had "lost his fight with PKD". Those words tumbled around in my head for quite a long time after that, making me wonder what it means to fight PKD, and reminding me that just because I feel great right now, that will not always be the case. But for now, I'm okay with not having to fight. For now, I'm just happy to be where I am. Stable. Like I said, I've learned never to take stability for granted.


Liz said...

Thanks for updating us, and I am glad you are stable! My mom has remained stable now for the last few months, which is great. They had predicted she would start dialysis before Christmas and she still hasn't needed to start. The longer we can put that off the better. Like you said, stability is a blessing.

Anonymous said...

I was found out I have PKD in Dec 06 and after 4 different doctors I found one that wants to help me... He is draining my kidneys so I hope I will not look like I am 9 months pregnant.. I really hate the stairs and the laughs.... I have no clue who to talk to.. who to turn to ...
This really sucks.... My blood pressure even with meds is very high....